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Living Our Best With Memory Loss

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Join us on “Living Our Best With Memory Loss,” a podcast dedicated to navigating life with Alzheimer’s and dementia. Hosted by individuals living with cognitive decline, we share personal stories, coping strategies, and insights from experts. Discover practical tips for managing symptoms, maintaining quality of life, and finding support. Tune in to connect with a community that understands and supports your journey. Subscribe for new episodes and join us in living our best with memory loss.
30 Episodes
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Welcome to the Season 3 Finale of Living Our Best with Memory Loss! In this special episode, our hosts Bob, Dennis, and SuAnne—who are all living with a memory loss diagnosis—are joined by renowned Alzheimer's researcher, Dr. Gregory Jicha.Dr. Jicha offers a powerful and hopeful look at the latest breakthroughs in Alzheimer's prevention and treatment, including the new FDA-approved drugs Leqembi and Kisunla, which are changing the biology of the disease for the first time. He also provides an exciting update on the potential of GLP-1 agonists like Semaglutide (often used for diabetes and weight loss) and the clinical trials that could make it a new tool in the fight against memory loss.This episode is packed with encouraging insights, but remember: this is not a substitute for medical advice. We are not doctors, and any treatment options discussed should be explored in consultation with your physician.In this episode, we discuss:The evolution of Alzheimer's treatment, from symptom management to disease-modifying therapies.A closer look at the new FDA-approved drugs Leqembi and Kisunla.The groundbreaking research into Semaglutide and its potential benefits for brain health.Why a comprehensive, multi-faceted approach to brain health is key.The importance of getting a specific diagnosis for the cause of your memory loss.
Welcome to Living Our Best with Memory Loss, Season 3, Episode 9! In this episode, our hosts Bob, Dennis, and SuAnne (all living with a memory loss diagnosis) are joined by special guest Dr. Gregory Jicha, a leading researcher in Alzheimer's and related cognitive diseases, a professor of neurology at the UK College of Medicine, and a senior investigator at the Sanders Brown Center on Aging.Today, we dive deep into the crucial connection between diet, Alzheimer's, and overall brain health. Dr. Jicha shares insights from the latest studies, discussing:The fundamental impact of diet on cognitive function.Why Omega-3 fatty acids, especially DHA, are essential for keeping nerve cells fluid and forming new connections.How to identify healthy fats (like plant-based oils) versus saturated fats (and that "congealed bacon grease" analogy!).The benefits of the Mediterranean, MIND, and DASH diets for brain and heart health.Why maintaining a healthy diet is still incredibly important, even after a memory loss diagnosis, to help delay progression.The complex role of cholesterol in the brain.Practical tips for adapting your diet as tastes change, including creative ways to enjoy healthy foods.
Welcome to Season 3, Episode 8 of "Living Our Best with Memory Loss"! In this powerful episode, our hosts Bob, Lori, Dennis, and SuAnne are joined by special guest Sallie Gentry, a licensed clinical social worker based in Knoxville, Tennessee.Sallie shares her deep passion for supporting caregivers and individuals navigating cognitive disorders, drawing from her personal experiences. This conversation dives into crucial topics, including:The vital importance of purpose for individuals living with cognitive decline and how to maintain engagement.The caregiver's role: How to balance support and empowerment, avoiding the common "doing too much" trap, and strategies like chore lists to foster independence.Cultivating patience, grace, and dignity in care partnerships, and how to avoid "parent-child" dynamics.Acknowledging and adapting to day-to-day fluctuations in abilities for those with memory loss.This episode offers invaluable insights for both individuals with a diagnosis and their caregivers, emphasizing that true support nurtures emotional well-being, preserves dignity, and fosters a sense of purpose.
Welcome back to "Living Our Best with Memory Loss"! This is Season 3, Episode 7, and the second part of our conversation with Mike Zundell. Hosts Lori, Bob, and Dennis speak with Mike, founder of NotDemented.com, who dives deep into his mission to eliminate the word "dementia" from our vocabulary due to its profound stigma and negative impact. Don't forget to like this video and subscribe to our channel for more insightful episodes! Join the movement and learn more at: https://www.NotDemented.com
Welcome to Season 3, Episode 6 of "Living Our Best with Memory Loss"! In the first part of a powerful two-episode special, hosts Lori, Bob, and Denis are joined by the inspiring Mike Zuendel.Mike shares his deeply personal and proactive journey with memory loss. He opens up about his family's history with Alzheimer's and his own genetic predisposition, carrying both APOE4 genes. Discover his "moment of truth" that prompted him to seek an early diagnosis of mild cognitive impairment due to Alzheimer's disease.This episode highlights why early detection and proactive healthcare are so crucial. Mike discusses how timely treatment, including 36 monthly infusions, successfully removed pathological beta-amyloid plaque from his brain. He's a living testament that a diagnosis doesn't mean the end of a vibrant, active life. Mike continues to run businesses, engage in public speaking, enjoy skiing, and traveling the world.Join us to hear Mike's powerful message of hope and action, proving that it's possible to live your best life, even with a memory loss diagnosis.If you found this episode helpful or inspiring, please give it a like and subscribe to our channel for more content on living our best with memory loss!
Welcome to Season 3, Episode 5 of "Living Our Best with Memory Loss"! In this powerful episode, hosts Bob, Lori, Denis, and SuAnne are joined by the inspiring Sam and Susan Simon.Sam and Susan share their remarkable journey, beginning with Susan's breast cancer diagnosis in 2000. Sam, her caregiver, channeled his experiences into a one-man show, navigating the emotional complexities of her illness. Defying initial prognoses, Susan has been cancer-free for over 24 years!The conversation takes a poignant turn as Sam reveals his own diagnosis with mild cognitive impairment (MCI), and later, Alzheimer's disease. He candidly discusses the relief of a diagnosis after initial dismissals and how his memory challenges became evident while performing his first play.Inspired once again, Sam created a second one-man show, this time as a patient living with Alzheimer's. He passionately advocates for:Living a meaningful life with memory loss: Strongly opposing assisted suicide, Sam believes individuals with Alzheimer's still have valuable contributions to make, even if it's just a "nanosecond" towards finding a cure.The necessity of accommodations: He champions "cognitive navigators" and increased accessibility for those with cognitive impairments, highlighting tools like the "hidden disability" lanyard used in airports.Changing the narrative around memory loss: Sam expresses his strong dislike for the term "dementia," finding it degrading and dehumanizing, preferring "memory loss" to emphasize the human being behind the diagnosis.Join us for this deeply moving and insightful discussion that challenges perceptions, advocates for dignity, and celebrates the resilience of the human spirit.
What if redesigning the world around you could lead to a more purposeful and fulfilling life with memory loss? In this powerful episode, hosts Bob, Lori, Denis, and SuAnne sit down with Katie Norris, an expert in applying the Montessori method to memory care, to explore this idea.Katie explains how the Montessori philosophy—originally developed for children—provides a framework for respecting the individual, fostering independence, and creating a "prepared environment" that supports the brain. She shares practical, compassionate strategies for moving beyond a one-size-fits-all model of care. From modifying a recipe so a loved one can still enjoy cooking to understanding that a question like "When can I go home?" is a cue to an unmet need, this conversation is filled with actionable insights.
In this moving episode, we are joined by Sarah Dickson of the Alzheimer's Association, Tennessee Chapter, and Donna Barber, a dedicated volunteer whose husband, Larry, is living with Alzheimer's.Donna shares her personal journey with immense transparency—from the first signs of memory loss and receiving the diagnosis, to the daily emotional challenges and the profound shift in her role from a wife to a full-time caregiver. She explains how making one phone call to the Alzheimer's Association became her "blessing," connecting her to a community and a support system that she and Larry desperately needed.This episode is a vital listen for anyone touched by Alzheimer's or other forms of cognitive impairment. Whether you are a caregiver feeling overwhelmed, a person living with a diagnosis, or someone who wants to help, Donna and Sarah's message is clear: You do not have to do this alone. There is hope, there is help, and there is a community waiting for you.➡️ Get Involved or Find Help:If you or someone you know needs support or wants to volunteer, visit the Alzheimer's Association at: https://www.alz.org/volunteer
Find the book here: https://a.co/d/24OFEvNWelcome back to the Living Our Best With Memory Loss podcast! This is Season 3, Episode 2. We are continuing our discussion with Dr. Brent Forester and Thomas Harrison on navigating the complexities of memory loss and cognitive challenges. In this continuation of our conversation, hosts Lori, Bob (living with MCI due to Vascular Disease), Denis (living with Early Onset Alzheimer's), and SuAnne (living with MCI due to Multiple Sclerosis) are again joined by special guests Dr. Brent Forester (Geriatric Psychiatrist) and Thomas Harrison (Author & Former Caregiver), authors of "The Complete Family Guide to Dementia: Everything You Need to Know to Help Your Parent and Yourself." We pick up where we left off, diving deeper into the practical and emotional aspects of considering and choosing a care facility for a loved one.This video is essential for individuals experiencing memory changes, family members, caregivers, and even healthcare professionals. If you're looking to understand the next steps after acknowledging cognitive decline, or if you're seeking guidance on facility selection, transitioning a loved one, or providing ongoing support, this episode offers profound insights and practical advice.
Find the book here: https://a.co/d/24OFEvNWelcome to Season 3, Episode 1 of the Living Our Best With Memory Loss podcast! In this first of a two-part series, we explore why treating significant memory loss or cognitive challenges with the seriousness of a disease is vital for both individuals and their families. Hosts Lori, Bob (living with MCI due to Vascular Disease), Denis (living with Early Onset Alzheimer's), and SuAnne (living with MCI due to Multiple Sclerosis) are joined by special guests Dr. Brent Forester and Thomas Harrison. They discuss their motivations behind co-authoring the insightful book, "The Complete Family Guide to Dementia: Everything You Need to Know to Help Your Parent and Yourself," and why proactive planning is key to navigating the journey ahead.
Episode 10 - Cognitive Evaluations & The Physician’s Playbook with Dr. Barak Gaster | Season 2 Finale In the final episode of Season 2 of Living Our Best With Memory Loss, we welcome Dr. Barak Gaster, a nationally recognized expert in dementia care. Dr. Gaster discusses the importance of cognitive evaluations, how they help with early diagnosis, and what patients and caregivers should know when navigating memory loss. We also explore The Physician’s Playbook for Dementia, a critical tool designed to help doctors recognize early dementia symptoms, diagnose more effectively, and guide patients through care planning. This conversation is packed with essential insights for anyone concerned about brain health, caregiving, or early intervention. In this episode, we cover: ✔️ What happens during a cognitive evaluation ✔️ Signs that it’s time to seek medical advice ✔️ How The Physician’s Playbook for Dementia is changing dementia diagnosis ✔️ How caregivers and patients can advocate for better medical care 🎧 Listen now and share this episode with those who may benefit! 📌 Visit our website for resources: www.livingourbest.org 📌 Subscribe for more: @LivingOurBestWithMemoryLoss #Dementia #Alzheimers #MemoryLoss #CognitiveHealth #DementiaCare #BrainHealth #DementiaSupport #CaregiverSupport #DementiaDiagnosis #AlzheimersAwareness #Neurology #LivingWithDementia #DrBarakGaster #DementiaEducation #PhysiciansPlaybook #LivingOurBestWithMemoryLoss
In the second part of our enlightening conversation with Dr. Catherine A. Madison, M.D., we explore deeper into the world of brain health and dementia care. Dr. Madison, a renowned expert and former Medical Director of the Ray Dolby Brain Health Center, provides valuable insights into early diagnosis, effective caregiving strategies, and the latest advancements in understanding memory loss conditions. This episode offers practical advice and a compassionate perspective for caregivers, patients, and anyone impacted by cognitive decline. Whether you’re looking for ways to support a loved one or seeking knowledge about brain health, Dr. Madison’s expertise will guide and inspire you. Don’t forget to share this episode with friends and family who might benefit from these insights, and subscribe to our podcast to stay updated on future episodes. For additional resources, visit our website at www.livingourbest.org. Tags: dementia care, brain health, caregiving tips, cognitive decline, Alzheimer’s disease, Dr. Catherine Madison, memory loss, dementia podcast, early diagnosis, brain health resources, caregiving support.
Episode 8: Insights on Dementia Care with Dr. Catherine A. Madison, M.D. In this episode, we welcome Dr. Catherine A. Madison, a neurologist and director of the Ray Dolby Brain Health Center. Dr. Madison brings decades of experience in dementia care, neurology, and patient advocacy. She shares invaluable insights into the challenges of memory loss, the latest approaches to care, and the importance of understanding individual needs. Whether you’re a caregiver, healthcare professional, or someone affected by memory loss, this episode provides practical advice and heartfelt stories. Dr. Madison’s expertise offers hope and clarity to those navigating Alzheimer’s, dementia, and related conditions. 👉 Tune in to learn more and explore helpful resources at www.livingourbest.org. 🎙️ Don’t forget to subscribe to our podcast and share it with anyone who might benefit. Together, we can create a supportive community for individuals living with memory loss and their loved ones. #DementiaCare #AlzheimersSupport #LivingOurBestPodcast #MemoryLossAwareness
Episode 7: Living Our Best With Memory Loss — Celia Gruzalski’s Story In this episode of Living Our Best With Memory Loss, we’re joined by Celia Gruzalski from Knoxville, TN, as she shares her powerful story of living with memory loss. Celia opens up about the challenges she faces and how she continues to find joy and purpose through her journey. Her insights offer hope and inspiration to others navigating life with cognitive decline, as well as valuable advice for caregivers and loved ones. Celia reminds us all that even with a diagnosis, there is still a meaningful life to live and enjoy. 💬 Tune in to hear her unique perspective on staying positive, building community, and finding ways to live well with memory loss. Be sure to follow our podcast, share this episode with someone who needs it, and explore more resources on our website at www.livingourbest.org.
In this insightful episode of Living Our Best With Memory Loss, we are joined by Glen Kyle, a Certified Elder Law Attorney with deep expertise in life care planning, Medicaid advocacy, estate planning, and elder care law. Glen’s dedication to helping families navigate the complexities of aging and memory loss shines through as he shares invaluable advice for caregivers and those diagnosed with dementia or memory loss. Topics covered include: • The importance of life care planning for securing your loved one’s future. • Strategies for Medicaid planning to protect assets and provide financial stability. • The role of estate planning and special needs trusts in elder care. • Practical tips for families dealing with memory loss or dementia diagnoses. Whether you’re a caregiver, a family member, or someone personally navigating memory loss, this episode is filled with actionable insights and hope. Glen Kyle’s approachable style and wealth of knowledge make this a must-listen for anyone seeking to better understand the legal side of memory loss care. 🎧 Subscribe, share, and follow us to help spread these important resources to those who need them most. Visit our website for more episodes and helpful tools: www.livingourbest.org #LivingOurBestWithMemoryLoss #ElderLaw #DementiaCare #MemoryLossSupport #LegalPlanning #CaregiverResources
Episode 5: Dr. Brenda Nicholson - Navigating Dementia with Compassion and Expertise In this episode of Living Our Best With Memory Loss, we are honored to welcome Dr. Brenda Nicholson, a renowned expert in dementia care, research, and advocacy. With years of experience as a physician and a deep passion for improving the lives of those affected by Alzheimer’s and dementia, Dr. Nicholson shares essential insights on navigating a diagnosis, planning for the future, and supporting loved ones through their journey. Dr. Nicholson also provides practical advice for caregivers and sheds light on the latest developments in dementia research. Whether you’re a patient, a caregiver, or someone seeking to understand memory loss, this conversation is packed with information to help you live your best life with memory loss. Be sure to follow, share, and rate our podcast to help us reach others who can benefit from these meaningful conversations. For more resources and updates, visit our website at www.livingourbest.org. Tags: Alzheimer’s, Dementia, Memory Loss, Caregiver Support, Brain Health, Living Well, Podcast, Health Resources, Brenda Nicholson MD, Health and Wellness.
Episode 4 of Living Our Best with Memory Loss welcomes Shanna Browning from First Century Bank. Shanna shares her expertise on financial planning and offers practical advice for families navigating the challenges of Alzheimer’s, dementia, and cognitive decline. Her insights into making informed decisions and accessing resources can be a game-changer for caregivers and those living with memory loss. This episode is a must-listen for anyone seeking clarity and guidance during a challenging journey. Shanna’s advice is actionable, compassionate, and rooted in her wealth of knowledge. If you find this episode helpful, please follow our podcast and share it with friends and family. Together, we can reach more people who need support and resources. Don’t forget to subscribe so you never miss an episode of Living Our Best with Memory Loss!
Episode 3 of Living Our Best With Memory Loss features Jeannie Hixon, who shares her heartfelt journey caring for her mother with Alzheimer’s. In this episode, Jeannie opens up about the challenges of caregiving and the ways she has found strength and support. Her story is filled with practical advice and relatable experiences that offer hope and guidance to caregivers and families facing memory loss. Whether you’re a caregiver, a loved one, or someone seeking to better understand dementia, this episode provides valuable insights into navigating the complexities of Alzheimer’s care. Listen in as Jeannie shares the lessons she’s learned, the importance of support systems, and how she has found meaning and connection through her journey. If you know someone who might benefit from hearing Jeannie’s story, please share this episode with them. Together, we can spread hope and helpful resources to those who need them most. 🎙️ Listen now on Spotify, Apple Podcasts, or your favorite platform! 🔗 Check out more at our website. #Alzheimers #DementiaCare #CaregivingJourney #MemoryLossSupport #LivingOurBestPodcast #AlzheimersAwareness #CaregiversUnite #SupportForCaregivers #PodcastRecommendations #BrainHealth
We’re kicking off Season 2 of Living Our Best With Memory Loss with an inspiring two-part conversation featuring Deborah Kan, founder of BeingPatient.com. As a former journalist and executive producer at The Wall Street Journal, Deborah’s personal journey navigating her mother’s Alzheimer’s diagnosis led her to create Being Patient, a trusted platform dedicated to brain health and neurodegenerative disease. In this first episode, Deborah shares how her mother’s diagnosis shifted her perspective and inspired her to leave her established career to focus on bridging the gap between patients, caregivers, and the expert community. From the challenges of accessing unbiased information to the creation of a global community that fosters understanding and hope, Deborah’s story is one of resilience, advocacy, and passion. Key highlights from this episode include: • The inspiration behind Being Patient and how it has grown into a global resource for millions. • Deborah’s insights into the gaps in Alzheimer’s research and care. • How storytelling and journalism can empower patients and caregivers. • Ways caregivers and families can connect with the Alzheimer’s community to find support and guidance. Don’t miss Deborah’s incredible insights as she shares her journey and discusses the importance of education, awareness, and breaking down barriers in dementia care. Be sure to tune in next week for Part 2 of this enlightening conversation! Like, comment, and subscribe to our channel @LivingOurBestWithMemoryLoss for more episodes, and visit our website at www.livingourbest.org for additional resources and updates. Let’s continue the conversation and create a community where those with memory loss can truly live their best.
Episode 2: Deborah Kan (Part 2) In this episode, we continue our heartfelt conversation with Deborah Kan, founder of Being Patient, a trusted platform dedicated to Alzheimer’s and brain health resources. Deborah dives deeper into her personal journey caring for her mother with Alzheimer’s and shares how it inspired her mission to empower families, caregivers, and patients with accurate, unbiased information. We explore ways to bridge the gap between patients, caregivers, and the medical community, and Deborah offers practical advice on staying informed about research, finding support, and navigating the challenges of memory loss. Her insights are both hopeful and empowering, making this episode a must-listen for anyone touched by Alzheimer’s or dementia. Tune in to gain valuable knowledge and discover resources that could make a difference in your life or the life of someone you love. Visit www.livingourbest.org for more information and resources mentioned in the episode. Be sure to follow our podcast and share it with others who may benefit from these important discussions!
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