DiscoverWell Beyond Medicine: The Nemours Children's Health Podcast
Well Beyond Medicine: The Nemours Children's Health Podcast
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Well Beyond Medicine: The Nemours Children's Health Podcast

Author: Nemours Children's Health

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Exploring people, programs and partnerships addressing whole child health.

66 Episodes
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Duchenne muscular dystrophy is the most common and severe form of muscular dystrophy. According to Nemours KidsHealth.org, it affects boys more often than girls. According to the Muscular Dystrophy Association, heart and respiratory muscle problems emerge in the teen years and can lead to serious complications. In terms of the heart, the issue at hand is cardiomyopathy. Dr. Takeshi Tsuda is a pediatric cardiologist at Nemours Children’s Health who studies cardiomyopathy in boys with Duchenne. He joins this episode to talk about the unique qualities of cardiomyopathy in young teenagers with Duchenne muscular dystrophy, which have not previously been well characterized. Guest: Takeshi Tsuda, MD, Pediatric CardiologyNemours Children’s Health, Delaware Valley Host/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
Muscular dystrophy is a genetic disorder that makes the muscles of the bodies of those affected get weaker over time. There's no known cure, but there are treatments, and researchers continue to learn more about how to prevent and treat it. In this episode, we discuss one specific type of genetic disorder: Duchenne muscular dystrophy, and learn about a new FDA-approved gene therapy that is bringing hope to families.Learn More Guests: Omer Abdul Hamid, MD, Neuromuscular Neurologist, Nemours Children’s Hospital, Florida Rulla Starr, Neuromuscular Program Coordinator, Nemours Children's Hospital, FloridaHost/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
When it comes to providing health services, the most precious resource of any healthcare system, hospital or provider's office is its people: those who make up the healthcare workforce. Yet the nation's expanding healthcare needs are outstripping the workforce size, creating a severe shortage of employees at all levels.While there is no single solution to the healthcare workforce crisis, a unique partnership pairs Nemours Children's Health with the state's vocational-technical high schools to train high schoolers for healthcare careers. Guests:Yvette Santiago, Director, Community Engagement, Nemours Children's Health, Delaware ValleyMargaret LaFashia, DNP, Director of Workforce Partnership Development, Nemours Children's Health, Delaware ValleyKyle Hill, EdD, Principal, Howard High School of Technology of the New Castle County Vocational-Technical School District, Wilmington, Delaware Deanna Lee, Certified Clinical Medical Assistant, Nemours Children's Hospital, Delaware, and student, Howard High School of TechnologyHost/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
The non-profit, non-denominational St. Patrick's Center in Wilmington, Delaware, has served that community for over half a century. They provide emergency food, meals, respite for the homeless, clothing, transportation, and recreational activities for people in need on the city's east side. Our guest host, Che Parker, met up with Joe Yacyshyn, St. Patrick's Center's Board Chair, as Nemours Children’s associates were conducting a clothing drive to benefit the organization's clients. They talked about the work of the St. Patrick's Center and the strong bond between this non-profit and Nemours Children's Health.Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
SEGMENT 1: Menstruation: it's something half of the world's population experiences. Yet having the right resources - access to period products and health information about menses can prove elusive for some due to financial concerns, lack of communication and openness on the topic due to stigma, or cultural and religious considerations. Our topic with Nemours Children's Health adolescent medicine specialist Dr. Robin Miller is period equity- and how to achieve it. Nemours Period Pantry Amazon Wish ListSEGMENT 2: A partner profile of Duffy's Hope, serving at-risk teens in Wilmington, Delaware, by providing them with one-on-one mentoring, tutoring, financial literacy, educational and enrichment trips, etiquette training, school and home visits, inspirational guest speakers, and group discussions.Learn more about Duffy's Hope.Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
SEGMENT 1:  As children with congenital heart disease (CHD) become adults with adult congenital heart disease (ACHD), they continue to require specialized care and will need that care and monitoring for life. Find out why this is an important — and growing — area of specialty care. SEGMENT 2:  It takes hours of preparation, planning and education by a multidisciplinary team before a high-risk pediatric cardiology patient can leave the walls of a hospital and head for home. Identifying risk factors and mitigating them at the point of discharge is key! Since 2019, the Supervised Family Care Program at the Nemours Children's Cardiac Center has been utilized to ensure the safe discharge of high-risk cardiac patients.Guests:Devyani Chowdhury, MD, MHA, Cardiologist, Medical Director, Adult Congenital Heart Disease Program, Nemours Children’s Cardiac Center, DelawareDeepika Thacker, MD, Pediatric Cardiologist, Medical Director, Cardiac Inpatient Unit, Nemours Children’s Cardiac Center, DelawareDana Zingo, RN, Specialty Nurse, Nemours Children’s Cardiac Center, Delaware Host/Producer: Carol VassarThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
In the final episode of our four-part series “Hot Topics in Neonatology” we explore neonatal abstinence syndrome (NAS), a byproduct of prenatal drug exposure — one of the fastest growing public health problems in the world. In the U.S., the most recent data from the CDC indicate that the number of pregnant people with opioid-related diagnoses documented at delivery increased by 131% from 2010 to 2017. The implications for their babies include preterm birth, still birth, birth defects and neonatal abstinence syndrome, or NAS. SEGMENT 1: We talk with Dr. Ju-Lee Oei from the Royal Hospital for Women in Sydney, Australia, who provides an overview NAS — what it is, how it's diagnosed and how it's treated.SEGMENT 2: Andre Sukta, a research and development projects manager at the United States Drug Testing Laboratories in Chicago, joins us to talk about the recent history of newborn toxicology screening.Carol Vassar, producer/hostExplore the Full Series: Part 1, Episode 50 The NICU View: Mom & BabyPart 2, Episode 51 Fluid Dynamics: What's New in Treating EPRA Part 3, Episode 52 Fragile Beginnings: Exploring NEC in Newborns Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
In the third of our four-part series “Hot Topics in Neonatology” we talk with health care providers who are on the frontlines working to prevent adverse outcomes and improve the quality of care for the most vulnerable babies. SEGMENT 1: Necrotizing enterocolitis  (NEC) is the most common and serious intestinal disease among premature babies. It’s so dire that preventing it has become the life’s work of many who treat pre-term babies, including Dr. Sheila Gephart with the University of Arizona College of Nursing in Tucson. Dr. Gephart and her team have created an NEC prevention protocol bundle that is showing promising outcomes, and she’s using a telementoring tool called Project ECHO to  “force multiply”  implementation and training around the protocol bundle to make large-scale change easier to accomplish at NICU level. SEGMENT 2: Continued quality improvement (QI) is a high priority for every health care system at every level of care — and our nation’s NICUs are no exception. When working with the smallest of babies in the most precarious of medical situations, the principles of high reliability, the reliance upon evidenced-based protocols and practices, the ability to sustain success and to learn from failures are absolute necessities. Neonatologist Dr. Hannah Fischer is Director of Quality Improvement and Safety for the Division of Neonatal Medicine at Norton Children’s Hospital in Louisville, Kentucky sits down with us to discuss her philosophy of NICU QI, bringing QI to NICUs across her state, and the quality measures that are critical in the first 60 minutes of the life of of a premature newborn — the so-called "Golden Hour". Guests:Sheila Gephart, PhD, RN, FAAN, Professor and Interim Chair, Division of Biobehavioral Health Sciences, University of Arizona, College of Nursing  Hannah Fischer, MD, Associate Professor, Division of Neonatology at the University of Louisville  Producer/Host: Carol VassarFull Series: Part 1, Episode 50The NICU View: Mom & BabyPart 2, Episode 51Fluid Dynamics: What's New in Treating EPRA  Part 4, Episode 53 Babies in Crisis: Understanding Neonatal Abstinence Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
We continue our four-part series “Hot Topics in Neonatology” with Part 2 that explores the latest in neonatology-related research and education with experts from across the United States.SEGMENT 1: Amniotic fluid is the liquid that surrounds a baby during pregnancy, and it plays a key role in the development of the fetus. According to the March of Dimes, in the early weeks of pregnancy, the amniotic fluid is mostly water that comes from mom. After about 20 weeks, the baby’s urine makes up most of the amniotic fluid. There are instances, however, when there is fetal kidney disease. That means no urine, and no amniotic fluid. That is known as Early Pregnancy Renal Anhydramnios (EPRA), which is almost universally fatal. However, there is a new trial taking place in the U.S. — the RAFT Trial — which provides amniotic fluid replacement. Here to talk about this promising new development is Dr. Jena Miller, who serves as an assistant professor at the Johns Hopkins Center for Fetal Therapy in Baltimore. SEGMENT 2: According to the NIH, medical simulation allows the acquisition of clinical and non-clinical skills for use in a health care setting through deliberate practice. In simulation, trainees can make mistakes and learn from them without the fear of harming any patients. Dr. Rachel Umoren is a Neonatologist at the University of Washington and Seattle Children’s Hospital where she is the Director of the Neonatal Education and Simulation-Based Training Program. Her research focuses on improving neonatal outcomes globally through simulation-based education, and our wide-ranging conversation includes her work using a Smart-phone-based virtual simulation app to bring training to underresourced areas here and abroad. Guests:Jena Miller, MD, Assistant Professor, John Hopkins Center for Fetal Therapy Rachel Umoren, MD, MS, Director, Neonatal Education and Simulation-Based Training Program, Seattle Children’s Hospital Host/Producer: Carol VassarFull Series: Part 1, Episode 50The NICU View: Mom & Baby Part 3, Episode 52Fragile Beginnings: Exploring NEC in Newborns Part 4, Episode 53 Babies in Crisis: Understanding Neonatal Abstinence Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
We begin our four-part series “Hot Topics in Neonatology” with the story of author and preemie family advocate Deborah Discenza. Deb was 30 weeks pregnant when she gave birth to her daughter, Becky.  In this episode she shares their NICU story of persistence, resilience, and how she is paying it forward by helping and supporting other pregnant people and their pre-term babies. Find resources and more info at PreemieWorld Foundation.Guest: Deb Discenza, Founder & Executive Director, PreemieWorld Foundation Inc.Host/Producer: Carol VassarFull Series:Part 2, Episode 51 Fluid Dynamics: What's New in Treating EPRAPart 3, Episode 52Fragile Beginnings: Exploring NEC in NewbornsPart 4, Episode 53Babies in Crisis: Understanding Neonatal Abstinence Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
New research indicates that injecting neuroblastoma tumors with Zika virus can shrink or eliminate those tumors in mice, suggesting that the virus could someday serve as an effective cancer therapy. This is newly published in the peer-reviewed journal Cancer Research Communications, from the American Association for Cancer Research. On this week's episode, we hear from the study's lead, Dr. Tamarah Westmoreland, and first author, Dr. Joseph Mazar, both with Nemours Children’s Health, about this incredibly exciting research. For more information, read the recent press release about the study.Guests:Tamarah J. Westmoreland, MD, PhD, Associate Professor of Surgery, Nemours Children’s Hospital, FloridaJoseph Mazar, PhD, Research Scientist, Nemours Children’s Hospital, FloridaCarol Vassar, host/producer  Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
SEGMENT 1:  Culinary medicine is an evidence-based medical practice that affirms the saying "You are what you eat." One part food, one part cooking, and one part medical science, culinary medicine aims to help folks make the right decisions about food to help prevent and treat disease. Pediatric gastroenterologist Dr. Maria Mascarenhas with the Children's Hospital of Philadelphia counts among her many specialties culinary medicine. On this episode, we talk about her passion for this relatively unknown but vitally important sliver of health care. SEGMENT 2: Whenever a child leaves the hospital setting for home, it's a cause for celebration. But it's also the moment when the role of hospital-based child life providers — the specialists who help children cope with their medical experience — often ends. For children whose medical conditions continue to require treatment, even at home, their psychosocial needs don't end, and one Texas-based organization, Child Life On Call, is using technology to bring important child life services to kids outside the hospital setting, no matter where in the world they may live. Carol Vassar, producerGuests:Maria Mascarenhas, MBBS, pediatric gastroenterologist, Children’s Hospital of PhiladelphiaKatie Taylor, CCLS, CEO & Founder, Child Life on CallJamie Gentille, MPH, CCLS, Advisory Board Member, Child Life on CallThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
SEGMENT 1: We're exploring the world of pediatric anesthesiology and the pressures and stresses of being an anesthesiologist with Dr. Destiny Chau, Dr. Meera Gangadharan, and Dr. Meenakshi Atteri.SEGMENT 2: It's a trip to Philadelphia Marathon Weekend to learn more about the mentorship work of Students Run Philly Style with its Executive Director Lauren Kobylarz . Host/Producer: Carol VassarGuests:Meera Gangadharan, MD, FAAP, FASA, Pediatric Anesthesiologist, Children's Memorial Hermann Hospital, HoustonDestiny Chau, MD, Pediatric Anesthesiologist, and Professor, Division of Pediatric Cardiovascular Anesthesia, University of Arkansas Medical SystemMeenakshi Atteri, MD, Pediatric Anesthesiologist, Arkansas Children's HospitalLauren Kobylarz, Executive Director, Students Run Philly StyleThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
It's a pediatric health care innovation episode of Well Beyond Medicine covering two new tools applicable to improving the health and health care experience of the smallest of babies. SEGMENT 1: It was a casual exchange between two colleagues that proved to be the point of conception for an infant positioning cradle, dubbed SmolTap, a simple medical device designed to safely, comfortably and easily hold an infant who is undergoing a spinal tap. SEGMENT 2:  We'll talk about the smart baby bottle that is helping feed and measure outcomes for premature babies still in the NICU, where feeding issues are not uncommon. Guests: Robert "Bob" Cooper, CEO, SmolTapTom Hickey, Communications Advisor to SmolTapTommy Cunningham, PhD, Co-Founder & CEO, nfant®Carol Vassar, host/producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
You've probably heard the news: an FDA-approved treatment for sickle cell disease applying the gene-editing tool CRISPR is now available in the U.S. It's a landmark moment in medical science on two fronts: the treatment - called Casgevey - is the first FDA-approved regimen to utilize CRISPR technology to treat any genetic disease. And it's a huge leap forward in the treatment of sickle cell, a genetic disease affecting about 100,000 people in the U.S. - mostly African Americans. Today, we'll delve into what this means for patients, learn more about the process they must undergo to receive a genetic sickle cell treatment, the little-known side effect of that process that affects their fertility - and how their fertility can be preserved.Guests: Manisha Bansal, MD, Hematology/Oncology, Nemours Children's Health, JacksonvilleVrunda Patel, MD, Pediatric & Adolescent Gynecology, Nemours Children's Hospital, DelawareDanielle Morley, BSN, RN, CPHON, Program Manager, Andrew McDonough B+ Fertility Preservation ProgramFredrianna Copeland Webster, advocate and sickle cell disease patient, Nemours Children’s Health, Jacksonville Carol Vassar, host/producerFor more information on sickle cell disease and to hear more of Fredianna's story, be sure to check out Episode 34 of the Well Beyond Medicine podcast.Click here to see Fredriana's billboard for Florida State College at Jacksonville. Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
SEGMENT 1:  Orange County, California is home to nearly 3.2 million people. Its 42 miles of beachfront and major attractions such as Disneyland, Knott's Berry Farm, and Mission San Juan Capistrano, make it a major West Coast tourist destination. Orange County is also home to the Children's Hospital of Orange County (CHOC), where Dr. Sandip Godambe is the Chief Medical Officer. In a wide-ranging discussion, we talk with Dr. Godambe about the ways in which CHOC's approach is similar to Nemours Children's Health in going well beyond medicine. SEGMENT 2: Childhood obesity is a serious problem in the United States, putting children and adolescents at risk for poor health. The prevalence of obesity for children and adolescents aged 2-19 pre-pandemic was 19.7%, affecting about 14.7 million kids. We'll dive into this issue with Nemours Children's Health Dr. Kirk Reichard — a leading national expert on childhood obesity and its treatments.Guests: Sandip Godambe, MD, Senior Vice President and Chief Medical Officer, Children’s Hospital of Orange CountyKirk W. Reichard, MD, Clinical Director, Division of General Surgery, Nemours Children’s Hospital, Delaware Carol Vassar, producer/hostThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
SEGMENT 1: The U.S. Department of Agriculture reports that in 2022, one in every five children in the United States was unsure where, when, or even if they would get their next meal. Childhood food insecurity significantly impacts physical, social, cognitive, and behavioral development. Blessings in a Backpack has become a national leader and model for fighting food insecurity in kids and working to put them on the path to a healthy start by providing hungry children with backpacks filled with nutritious food items - enough to last from when a child leaves school on Friday until they return the following Monday. SEGMENT 2: Nemours Children's Health Assistant Vice President and Chief Patient Experience Officer Dr. Peggy Greco outlines what she sees as the three most important influences on a child's mental and emotional health.Guests: Beth Bush, Director of Athletic & Strategic Partnerships, Blessings in a BackpackPeggy Parish, Community Engagement Director, Nemours Children's Health, FloridaPeggy Greco, PhD, Assistant Vice President, Chief Patient Experience Officer, Nemours Children’s HealthCarol Vassar, host/producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
Healthcare has always been a hotbed of innovation, though it seems today to be moving forward at light speed, with a wide range of advancements to enhance the efficiency, effectiveness, safety, accessibility, and quality of healthcare services at the bedside and behind the scenes. We're talking healthcare innovation today with two national experts whom we met up with at HLTH 2023, including Nemours Children’s Chief Innovation Officer Eric Jackson, MD, MBA, and nurse futurist Bonnie Clipper, DNP.  Host/Producer: Carol VassarGuests: Bonnie Clipper, DNP, MA, MBA, RN, CENP, FACHE, FAAN, Founder & CEO, Innovation AdvantageEric V. Jackson Jr., MD, MBA, Chief Innovation Officer, Nemours Children's HealthThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
Dr.  Stephen Klasko is a dynamic healthcare visionary who led Jefferson Health in Philadelphia as its President and CEO during much of the COVID-19 pandemic and currently serves as Executive in Residence for the venture capital group General Catalyst (GC). GC made news when they announced their intention to create the Health Assurance Transformation Corporation, through which they plan to buy an as-yet-unnamed healthcare system. The principles of this new company are based on Dr. Klasko's 2020 book entitled "UnHealthCare: A Manifesto for Health Assurance," and he gives us the basics in a wide-ranging conversation. Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
Dr. Garth Graham, the Director and Global Head of Healthcare and Public Health Partnerships at YouTube, has long espoused the belief that information is a social determinant of health. We had the chance to talk with Dr. Graham at HLTH 2023 in Las Vegas about this concept, as well as the topics of medical misinformation, health literacy, and the role, influence, and responsibility of YouTube - the world's most popular online video platform - and its parent company, Google, in creating a space where high-quality, evidenced-based health information get to the eyes and ears of those who need it.Carol Vassar, producerThanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show. Subscribe, review or let your voice be heard at NemoursWellBeyond.org.
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