Emma Fogarty on her new book and life with ‘butterfly skin’
Update: 2025-10-16
Description
Emma Fogarty is the oldest living Irish person born with Epidermolysis Bullosa: an extremely rare and painful disease.
When she was born, she wasn't expected to live beyond a week, yet 41 years later she has just released a book called ‘Being Emma: Living my best life with Butterfly Skin’ in which she details the resilience she and those around her have shown throughout her extraordinary life…
She joins Andrea to discuss.
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