I Traveled to Guatemala to Honor My Late Daughter | Losing Her to a Rare Disease
Description
Three years after losing her daughter Dalia to a rare disease, Jessica Fein embarked on a powerful journey to Guatemala—Dalia’s birthplace—to reconnect with her spirit.
In this episode, she shares the emotional experience of returning to the country, the rituals her family performed to feel Dalia’s presence, and the deep, unexpected ways grief and love intertwine. This is a story of remembrance, connection, and the unbreakable bond between a mother and her child.
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#raredisease #rarediseaseawareness #rarediseases #griefandloss #medicallycomplex #disabilityawareness
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